Stacey was diagnosed in January 2018 with Leiomyosarcoma (LMS), a rare, aggressive cancer of the smooth muscle cells. At the time of diagnosis, Stacey’s cancer, which presumably began as a small lump in her upper thigh (diagnosed in January 2017 as a deep vein thrombosis) had already metastasized to both lungs and her liver. Given that lung nodules were discovered at the time of her DVT diagnosis in 2017, we now know that Stacey already had metastatic LMS for at least a year before she was diagnosed.
In February 2018, Stacey began a combination regimen of chemotherapy and immunotherapy. In March, she faced a life-threatening complication when her liver tumors ruptured and began hemorrhaging into her abdominal cavity; she was hospitalized and had an emergency embolization, which halted the internal bleeding. Currently, her largest liver tumors are shrinking and dying while her other tumors remain stable. In August, Stacey will finish the 8th and final cycle of her current chemotherapy regimen; she will stay on the immunotherapy infusions for maintenance while exploring additional treatment options.
Sarcomas represent 1% of all adult cancers, and leiomyosarcomas make up roughly 20% of all sarcomas. Because of the rarity of sarcoma, there is limited funding for sarcoma research, with very little of that going to leiomyosarcoma-specific research.
Through it’s grant program, Leiomyosarcoma Support & Direct Research Foundation directly funds some of the most critical research of leiomyosarcoma today. LMSDR collaborates with researchers and other organizations to work towards the discovery of more effective treatments – and ultimately to find a cure. Your donation will go directly for research for this rare, aggressive cancer.
If you’d like to make a donation to Leiomyosarcoma Support & Direct Research, in honor of Stacey, please do it HERE. We will let the family know of donation – even if you don’t see it on your receipt.
About Leiomyosarcoma Support & Direct Research Foundation (LMSDR)
This fund was created out of love, to help others win their battle with leiomyosarcoma by funding LMS specific research. Leiomyosarcoma Support & Direct Research Foundation (LMSDR) raises donations for Leiomyosarcoma research and patient support. We advocate directly with sarcoma researchers to study leiomyosaroma. We offer the largest moderated support group online for leiomysarcoma, where patients and loved ones get the latest LMS news and personal support. The LMSDR’s website offers local support groups, details of what we do, the research we have funded and many resources for the Leiomyosarcoma community. The LMSe Alerts is our monthly newsletter, offering more updated clinical trials, news and community events. The Leiomyosarcoma Lifeline is our new blog, featuring patient stories and our well-known Long Term Thriver stories.
We collaborate with researchers and other organization to reach our mission and vision of finding treatments that will work. We have created the Leiomyosarcoma Tissue Bank for researchers to study our disease, the Leiomyosarcoma Patient Registry to collect data, and ran successful blood collections for study. We have brought patients and loved ones together from all over the world for education and support at our Leiomyosarcoma patient conferences, in Denver, Colorado, San Francisco, California, New York City, New York, and Maui, Hawaii. Please stay in touch with our website for more upcoming events sponsored by Leiomyosarcoma Support & Direct Research Foundation.
Leiomyosarcoma Support & Direct Research is an all volunteer organization. We are proud to have the minimal amount of expenses as possible, to ensure your money goes directly to funding promising research for Leiomyosarcoma specifically. You can volunteer, put on fundraisers, promote LMS awareness and ask your employer for matched funds. Please consider helping us Work, not wish, for treatments that will work for us. We have been a 501(C) (3) since 2006 and a tax-free charity.