LMS Support Groups and Resources
Leiomyosarcoma support groups and resources are critical to your survival. We highly recommend joining our LMSDR Facebook Group where you will find over 3,800 leiomyosarcoma survivors and loved ones, offering much information and support.
LEIOMYOSARCOMA INFORMATION
LMSeAlerts – a free LMS newsletter
Subscribe to LMSDR’s online newsletter with leiomyosarcoma news, clinical trial updates, the latest research projects and resources. Stay informed on the latest LMS developments. See subscribe button at the bottom of this page.
LMS Boot Camp: Straight Talk for the Newly Diagnosed
LEARN the basics of leiomyosarcoma and what you should know to help you survive. This is a down-to-Earth, entertaining crash course with information you’ll not get anywhere else. There are 7 videos to watch which include the topics of what is LMS, first steps to get organized, how to talk with your doctor, surgery, chemo, interventional radiology and immunotherapy, how to research LMS, coping with LMS and a devoted video about uterine leiomyosarcoma issues. Watch videos
A community LMS blog! Guest writers include LMS patients, caregivers, doctors and researchers. This blog gives the LMS community a vehicle to voice their experiences, educate each other, explain new treatments and research to each other. Topics include survivor stories, clinical trial news, book reviews, LMS resources and community events. Subscribe at the bottom of this page and stay connected. If you would like to contribute a written piece for the blog, contact us.
ONLINE LEIOMYOSARCOMA SUPPORT GROUPS
LMSDR Facebook Group
This is the largest leiomyosarcoma FB group with over 3,800 LMS survivors and caregivers. As a closed, confidential group, your posts show only to members of this group. All posts are moderated and LMS specific. When you request to join, the moderators will send you questions to answer before they can approve you. Please check your personal FB mailbox and respond. JOIN
LMSDR Caregivers Facebook Group
For caregivers only! Sometimes LMS caregivers need some support too. All posts are moderated and LMS caregiving specific. This is a closed, confidential group; posts can only be seen by group members and not the public. When you request to join, the moderators will send you questions to answer before they can approve you. JOIN
Leiomyosarcoma Research UK Facebook Group
For UK members to share UK resources and challenges. See their website: www.lmsruk.org
MORE RESOURCES
Cancer Financial Assistance Coalition
A coalition of organizations to help patients with financial challenges
Cancer Financial Toolkit
Exceptional site for legal, insurance, financial information
Cancer Legal Resource Center
Free attorney and legal help
Cancer Survival Toolbox
Award winning audio program
Connective Tissue Oncology Society (CTOS)
Scientific conferences for sarcoma researchers and practitioners
Finish Sarcoma Foundation
Travel funds for John Hopkins sarcoma patients from MD, PA, VA, OH, or WV.
Hope and Hugs
Gifts for patients – all profits support LMSDR
Financial help with clinical trial expenses
My Pathology Report
A resource for patients explaining your report
National Patient Travel Center
Finds free air travel and lodging for patients
NCCN – National Comphrehensive Cancer Network
Sarcoma guidelines for oncologists
NCCN – Guidelines for Patients (Soft Tissue Sarcomas)
Simplified explanation of the guidelines for sarcomas
Patient Advocate Foundation
Free legal help for cancer patients & co-pay relief program
PubMed – The National Library of Medicine
Where to look up any published research study
Sarcoma Alliance
Offers education, support and financial help for second opinions at a sarcoma center
Sarcoma Foundation of America
Advocates and funds sarcoma research
Sachin Sarcoma Society
Patient Support Group in India
Sarcoma UK
Provides information and support
Triage Cancer
Resources for financial, legal, insurance help
