Leiomyosarcoma Boot Camp Webinars for the Newly Diagnosed
LMS Boot Camp webinars were written by Sharon Anderson, President of Leiomyosarcoma Support & Research Foundation. She talks openly and frankly about the most important things you need to know to survive. Sharon’s knowledge comes from her research, discussions with sarcoma experts and personal experience helping patients since 2002, after she was diagnosed with stage 4 ULMS. For more guidance from leiomyosarcoma survivors see Words of Wisdom.
Newly diagnosed with LMS? Call us for help navigating this new journey. Caregivers are encouraged to call us too! 1-866-912-2730
WEBINAR 1 – LMS BOOT CAMP
What is leiomyosarcoma?
What do I most need to know to survive?
Which treatment is the most effective?
Where are the best sarcoma doctors?
What are the chances this will come back?
Are there long term survivors?
What are the keys to survival?
WEBINAR 2 – FIRST STEPS
Get organized – what you need
Get to a major sarcoma center
Be the expert on you… know your medical information
Get copies of your medical records and scans
How to get the most out of your doctor appointment
Establishing a collaborate relationship with your doctor
WEBINAR 3 – NEXT STEPS
Follow-up surveillance
Types of scans
Scanxiety
Testing your tumor
WEBINAR 4 – CURRENT TREATMENTS
Surgery
Chemotherapy
Interventional radiology
Immunotherapy
Clinical Trials
WEBINAR 5 – LMS RESEARCH
How to avoid scams
PubMed for all published research
NCCN Guidelines for doctors
Participate in research
WEBINAR 6 – COPING
What is trauma and PTSD?
Depression
Stress and empowerment
Seek treatment
Thoughts, feelings and behaviors
Tips
WEBINAR 7 – UTERINE LMS
Avoid morcellation of your tumor
Tamoxifen and uLMS
Estrogen and uLMS
Estrogen blockers