Doreen Kossove (Dr. Dee) was diagnosed with LMS in 2001. She was warm and honest, full of wacky fun, sometimes irascible, but always concerned for others. As a physician, her goal in life was to help and educate people. You couldn’t stop her! When she was in the hospital she would even try to train the nurses!
Originally from Brooklyn, N.Y., Doreen taught chemistry for five years, then got her MD and did pediatric residencies at Case Western and UCSF. Doreen married a physicist from South Africa and moved there, where she was active in the management of rape crisis, chronic fatigue syndrome, and community health. Her first love remained pediatrics.
Lacking information when Doreen was diagnosed, she created www.leiomyosarcoma.info which gives comprehensive information about the disease, hoping to share what she had learned.
While in South Africa, Doreen had an LMS tumor doctors considered inoperable. She moved back to San Francisco, alone, for an operation that saved her life. Later her daughter was able to join her and enrolled in the university nearby.
Known online as Dr. Dee, Doreen particularly encouraged people to advocate for themselves. She constantly pushed for more effective treatments for leiomyosarcoma as well as research. Plagued by serious, multiple health problems, she never stopped researching for people, not only for the L-M Sarcoma list but for several other groups on ACOR. People wrote to her from all over the world. She became close to many of them.
Thank you so much for helping to carry on Doreen’s fight against sarcoma!
If you would like to make a donation in honor of Doreen, please do it HERE. We will let the family know of donation – even if you don’t see it on your receipt.
About Leiomyosarcoma Support & Direct Research Foundation (LMSDR)
This fund was created out of love, to help others win their battle with leiomyosarcoma by funding LMS specific research. Leiomyosarcoma Support & Direct Research Foundation (LMSDR) raises donations for Leiomyosarcoma research and patient support. We advocate directly with sarcoma researchers to study leiomyosarcoma. We offer the largest moderated support group online for leiomyosarcoma, where patients and loved ones get the latest LMS news and personal support. The LMSDR’s website offers local support groups, details of what we do, the research we have funded and many resources for the Leiomyosarcoma community. The LMSe Alerts is our monthly newsletter, offering more updated clinical trials, news and community events. The Leiomyosarcoma Lifeline is our new blog, featuring patient stories and our well-known Long Term Thriver stories.
We collaborate with researchers and other organization to reach our mission and vision of finding treatments that will work. We have created the Leiomyosarcoma Tissue Bank for researchers to study our disease, the Leiomyosarcoma Patient Registry to collect data, and ran successful blood collections for study. We have brought patients and loved ones together from all over the world for education and support at our Leiomyosarcoma patient conferences, in Denver, Colorado, San Francisco, California, New York City, New York, and Maui, Hawaii. Please stay in touch with our website for more upcoming events sponsored by Leiomyosarcoma Support & Direct Research Foundation.
Leiomyosarcoma Support & Direct Research is an all volunteer organization. We are proud to have the minimal amount of expenses as possible, to ensure your money goes directly to funding promising research for Leiomyosarcoma specifically. You can volunteer, put on fundraisers, promote LMS awareness and ask your employer for matched funds. Please consider helping us Work, not wish, for treatments that will work for us. We have been a 501(C) (3) since 2006 and a tax-free charity.