We are an all-volunteer staff of patients and caregivers who are passionate about supporting others and helping researchers find treatments that will work.
Newly diagnosed with LMS?
Contact us for help navigating this new journey. Caregivers are encouraged to call us too!
Join our online support group!
We have over 3,800 survivors and caregivers, including long term survivors who can help guide you and offer hope.
“LMSDR was my anchor when I first learned of my diagnosis. There were so many questions! The web site as well as the Facebook support group provided not only the much needed answers but the human connection for emotional support that helped to keep me grounded. With such a rare disease as LMS you feel very alone, but through LMSDR, support is only one click away.”
-Theresa W., LMS survivor
Our Mission
To empower patients with information and support
Fund groundbreaking LMS research
Provide a bridge between patients and researchers, to collaborate on finding a cure