Suzanne Kurtz

Suzanne Kurtz is the Founder of Leiomyosarcoma Support & Direct Research Foundation (LMSdr). Learn more about her story. Newly diagnosed with LMS? Call us for help navigating this new journey. Caregivers are encouraged to call us too! 1-866-912-2730

Suzanne Kurtz

Founder of Leiomyosarcoma Support & Direct Research Foundation (LMSDR)

Suzanne Kurtz started Leiomyosarcoma Support & Direct Research Foundation (LMSDR) in 2006, to help find the cure for leiomyosarcoma.  Her vision was to create a relationship with researchers to advocate and fund worthy projects that would lead to effective treatments. Her second mission was to help keep patients healthy and alive until that happened. Of major importance was to create this website to help educate and connect patients to current information and support. She believed the success of this foundation would be dependent on us all to open our hearts and generously contribute our talents, skill and financial support for this cause.

Suzanne used to say, “If you want something, you have to work for it, not wish for it.” This became our slogan, “Working, not Wishing… for the Cure.” The Foundation’s original name, Leiomyosarcoma Support & Direct Research Foundation (LMSDR) reflected Suzanne’s desire to make sure donations went directly to fund worthy research and  not be wasted on high administrative costs. It also meant that LMSdr tries to “Direct Research” to leiomyosarcoma by meeting and advocating with doctors and researchers. In 2018, the word “Support” was added to the name, because LMSDR has become a crucial part of helping patients and loved ones find the treatments they need and the support to get them through their journey. Suzanne herself was always reaching out to families and offering them her wisdom and love.

Suzanne Kurtz lost her five year battle with uterine Leiomyosarcoma on November 12, 2008. Her vision and efforts live on with every new patient who visits this website and every penny invested in leiomyosarcoma research. Her family, patients and caregivers continue to devote their time and labor of love to keep Suzanne’s vision alive. You can honor her by donating to Leiomyosarcoma Support & Direct Research Foundation. Help find a cure for leiomyosarcoma.


Post Office Box 52697, Tulsa, Oklahoma 74152

Support Group

Join our private Facebook support group.

LEIOMYOSARCOMA: What You Need to Know

Remember or honor a loved one’s legacy by setting up a dedication page and requesting that donations be made in their honor or memory to help find a cure for sarcoma.