Beloved wife of Michael Liebowitz. Dear mother of Amy Liebowitz and Marc Liebowitz. Devoted sister of Harvey Turkel. Also survived by many other loving family members and friends.
Susan and I always found that the LMS information from the ACOR LMS List support group gave us help and comfort in her long fight against LMS. It was always our hope that the sharing of LMS information would improve the chances of finding better treatments for LMS.
Love and best wishes to all,
Susan’s courageous 8 ½ year battle with LMS:
2002–ULMS within a fibroid; TAH/BSO
2004-5–Mets to lungs; thoracotomy & VATS; 6 rounds of gem/tax
2006,07,08–More mets to lungs. cyberknife to eliminate 5 mets. Letrozole didn’t work.
2008,09–Paraspinal met to lower lumbar & sacral; surgery. Recurrence; surgery/radiation at same spot again. New met to ribcage. Many more small mets to lungs, now approx. 14 total. Started Yondelis trial; mixed results: some mets shrunk or stayed same, some grew, growth of ribcage met slowed. Recurrence (3rd time) to same paraspinal spot.
9/2009—Yondelis trial stopped (never resumed) for 7 weeks of 25 radiation treatments.
2009,10—New mets in lungs/ribcage & growth of all existing mets, now too big to treat.
April 5, 2010– Susan died at home 11 days after starting hospice care.
If you would like to make a donation in honor of Susan Liebowitz, please do it HERE. We will let the family know of donation – even if you don’t see it on your receipt.
About Leiomyosarcoma Support & Direct Research Foundation (LMSDR)
This fund was created out of love, to help others win their battle with leiomyosarcoma by funding LMS specific research. Leiomyosarcoma Support & Direct Research Foundation (LMSDR) raises donations for Leiomyosarcoma research and patient support. We advocate directly with sarcoma researchers to study leiomyosaroma. We offer the largest moderated support group online for leiomysarcoma, where patients and loved ones get the latest LMS news and personal support. The LMSDR’s website offers local support groups, details of what we do, the research we have funded and many resources for the Leiomyosarcoma community. The LMSe Alerts is our monthly newsletter, offering more updated clinical trials, news and community events. The Leiomyosarcoma Lifeline is our new blog, featuring patient stories and our well-known Long Term Thriver stories.Leiomyosarcoma Support & Direct Research Foundation
We collaborate with researchers and other organization to reach our mission and vision of finding treatments that will work. We have created the Leiomyosarcoma Tissue Bank for researchers to study our disease, the Leiomyosarcoma Patient Registry to collect data, and ran successful blood collections for study. We have brought patients and loved ones together from all over the world for education and support at our Leiomyosarcoma patient conferences, in Denver, Colorado, San Francisco, California, New York City, New York, and Maui, Hawaii. Please stay in touch with our website for more upcoming events sponsored by Leiomyosarcoma Support & Direct Research Foundation.
Leiomyosarcoma Support & Direct Research is an all volunteer organization. We are proud to have the minimal amount of expenses as possible, to ensure your money goes directly to funding promising research for Leiomyosarcoma specifically. You can volunteer, put on fundraisers, promote LMS awareness and ask your employer for matched funds. Please consider helping us Work, not wish, for treatments that will work for us. We have been a 501(C) (3) since 2006 and a tax-free charity.