I was diagnosed with leiomyosarcoma on 2/24/09 after a routine hysterectomy. The news turned out to be the even worse than I realized after learning, not only did I have cancer, but I had a pretty rare cancer. As I’ve become more educated since the diagnosis, I’ve learned how little research time and money goes to LMS. So, I’m creating my fund in the hopes my family and friends will be as generous with their money as they have been with their support.
9/21/10 – I found out in June the LMS has metastasized to my left lung. I started a one year treatment plan on 7/21. I’m doing chemo followed by surgery to remove remaining nodules. Then, I do some more chemo. Its going to be a hard year but worth it to be cancer free at the end!
1/12/12 – Once again, Misty and I get the news that LMS is back — this time in my abdomen. Chemo and likely surgery to come to get rid of things once again. Thanks so much to everyone for all the ongoing support!
10/28/12 – As many of you know, I’ve been struck again by LMS. This time it is in my liver, and it is not surgical. I have just started a promising new clinical trial and am getting the drug Trabectidin. Misty and I are prepared to continue to fight. Thank you all so much for your ongoing donations for the much needed research $$ for this cancer.
Thank you for your donations!! Sherry
If you’d like to make a donation to Leiomyosarcoma Support & Direct Research, please do it HERE. We will let the family know of donation – even if you don’t see it on your receipt.
About Leiomyosarcoma Support & Direct Research Foundation (LMSDR)
This fund was created out of love, to help others win their battle with leiomyosarcoma by funding LMS specific research. Leiomyosarcoma Support & Direct Research Foundation (LMSDR) raises donations for Leiomyosarcoma research and patient support. We advocate directly with sarcoma researchers to study leiomyosaroma. We offer the largest moderated support group online for leiomysarcoma, where patients and loved ones get the latest LMS news and personal support. The LMSDR’s website offers local support groups, details of what we do, the research we have funded and many resources for the Leiomyosarcoma community. The LMSe Alerts is our monthly newsletter, offering more updated clinical trials, news and community events. The Leiomyosarcoma Lifeline is our new blog, featuring patient stories and our well-known Long Term Thriver stories.
We collaborate with researchers and other organization to reach our mission and vision of finding treatments that will work. We have created the Leiomyosarcoma Tissue Bank for researchers to study our disease, the Leiomyosarcoma Patient Registry to collect data, and ran successful blood collections for study. We have brought patients and loved ones together from all over the world for education and support at our Leiomyosarcoma patient conferences, in Denver, Colorado, San Francisco, California, New York City, New York, and Maui, Hawaii. Please stay in touch with our website for more upcoming events sponsored by Leiomyosarcoma Support & Direct Research Foundation.
Leiomyosarcoma Support & Direct Research is an all volunteer organization. We are proud to have the minimal amount of expenses as possible, to ensure your money goes directly to funding promising research for Leiomyosarcoma specifically. You can volunteer, put on fundraisers, promote LMS awareness and ask your employer for matched funds. Please consider helping us Work, not wish, for treatments that will work for us. We have been a 501(C) (3) since 2006 and a tax-free charity.