My sister, Patricia Daley was an incredible daughter, sister, niece and aunt and will be in our hearts forever.
She had many names Patricia Marie, Trisha, Pat, Patty. For us she went by Tish and if we were fighting I would rearrange the letters that usually landed me in trouble with mom. Our family comprised of 4 girls and 2 boys, Tish being the eldest I came a year a day later we were each other’s birthday presents. As the other siblings came along Tish became mom’s helper; the only job she despised was watching us. My sister could do just about any thing, she watched mom sew and began sewing when she was 10. First sewing doll clothes for her sister’s and then her own clothes in 8th grade. Her fashion style was unique and all her own eclectic and different, just as her music preferences. Always progressive, from classical music to Black Sabbath.
Patricia Daley graduated from the Fashion Institute of Technology in New York City. After a few years in the fashion field she changed her career to archeology and worked on the Mississippi mounds. Tish found herself back in retail and reinvented herself a third time taking classes in all things computer. Tish always excelled in any career path she chose and won numerous awards for her work ethics. Tish was highly respected and loved by her coworkers past and present. Although a shy and quiet she never knew how much she was loved and respected by all who knew her. Tish bought her first home in Gaithersburg lovingly renovating each room herself. She built the most incredible stone wall and walk way out of stones she had found during her travels. She worked tirelessly on her garden and was finishing her porch on the second floor of her townhouse. She cherished her cat Oscar who was a surprise get well gift after her surgery. She also had her long time pet a parakeet named Aurora.
My sister, Patricia Daley was 56 when her fibroids were growing and her uterus was enlarged. In February she underwent a laparoscopic hysterectomy and she was told the fibroids were benign. The cancer went undetected until July when she was rushed to the hospital and several masses were discovered. After the masses (13) were removed, the cancer was diagnosed as LMS. The surgeon felt confident that they removed all the cancer visible to the eye. (The previous tissue samples from February were retested, and they were not benign as previously reported.) Tish took the news with stride and began her research on LMS. Through many late night talks and tears she faced this head on. She was going to begin hormone suppressors when the samples were tested and found to be estrogen receptive. The treatment also called for a scan in three weeks. While waiting for the treatment to begin she began to have severe back pains and shortness of breath. This was early August, She was sent for x rays for her back. The pain was unbearable and she was sent for a MRI that she was unable to complete but it was enough to see the large masses in her abdomen. August 30th she was rushed to the hospital’s cancer center were they tried to manage her pain. On August 31 the scan revealed the tragic news she had a large mass 23cm in her abdomen two tumors on her lungs and many more tumors were noted. The doctors attempted to manage the pain before she could get treatment. My niece likened the cancer to the Borg from Star Trek and we chanted “fight the Borg” and “Fight Win Live” as we rubbed her distended belly. She had two chemo treatments the last one was for “comfort measures”. We were given the news of “just days, weeks” the news brought family together in Maryland for support. She was released into Hospice care for pain management. Still my sister never gave up hope and was determined to beat this. She went from bedridden to walking. All the while believing she was going to live. Tish wanted to go home to Buffalo. We had found a way to get her home through Aero Care operating out of Chicago. Renee the transport coordinator attempted to get Tish to Roswell in Buffalo not only because of her rare cancer but because all her family is in Buffalo, unfortunately she was denied by Roswell. Renee would not give up until we got Tish to Buffalo and home. We got the news that Renee did the impossible and Tish was on her way to Buffalo. Under Hospice care she appeared to get stronger laughing and seeing old friends and family. Tish had several set backs but took them in stride. And went to stay with my sister. Tish was noticeably not eating and she struggled with this desperately wanting to get stronger. This was not to be the cancer began to take its toll, the edema on her legs made it hard to walk yet she did, but eventually she was bedridden and the signs of her dying were apparent. Tish did get to Roswell and spoke with a specialist who was up front and honest about her prognosis. This was the saddest experience to see her face her fears, disappointments and death. Three days later my sister passed away in Hospice. She was still fighting struggling to stay alive. We held her while she was taking her last breaths my father, whispered “I was there when you took your first breath and I am her for your last” as tears streamed down her face. She did not die peacefully; she died with too many unanswered questions, unfinished business and sadness. She did not want to die; she did not have to die. She told me if her death could save countless women from uterine LMS then her death would be worthwhile. I am determined to do just that with fundraisers and memorial walks and your donations will help find the answers my sister desperately needed.
FIGHT! WIN! LIVE!
I love you Tish a piece of my heart will be missing forever.
If you would like to make a donation in honor of Patricia Daley go to the the boxes to the right.
Please note: your online receipt will not have the honoree’s name – however your name with the honoree will be listed in the THANK YOU DONORS page for the family to see.
About Leiomyosarcoma Support & Direct Research Foundation (LMSDR)
We collaborate with researchers and other organization to reach our mission and vision of finding treatments that will work. We have created the Leiomyosarcoma Tissue Bank for researchers to study our disease, the Leiomyosarcoma website for education and support at our leiomyosarcoma patient conferences, in Denver, Colorado, San Francisco, California, New York City, New York, and Maui, Hawaii. Please stay in touch with our website for more upcoming events sponsored by Leiomyosarcoma Support & Direct Research Foundation.This fund was created out of love for Patricia Daley to help others win their battle with leiomyosarcoma by funding LMS specific research. Leiomyosarcoma Support & Direct Research Foundation (LMSDR) raises donations for Leiomyosarcoma research and patient support. We advocate directly with sarcoma researchers to study leiomyosarcoma. We offer the largest moderated support group online for leiomyosarcoma, where patients and loved ones get the latest LMS news and personal support. The LMSDR’s website offers local support groups, details of what we do, the research we have funded and many resources for the Leiomyosarcoma community. The LMSe Alerts is our monthly newsletter, offering more updated clinical trials, news and community events. The Leiomyosarcoma Lifeline is our new blog, featuring patient stories and our well-known Long Term Thriver stories.
Leiomyosarcoma Support & Direct Research is an all volunteer organization which Patricia Daley supported. We are proud to have Patient Registry to collect data, and ran successful blood collections for study. We have brought patients and loved ones together from all over the minimal amount of expenses as possible, to ensure your money goes directly to funding promising research for leiomyosarcoma specifically. You can volunteer, put on fundraisers, promote LMS awareness and ask your employer for matched funds. Please consider making a donation and helping us Work, not wish, for treatments that will work for us. We have been a 501(C) (3) since 2006 and a tax-free charity.