Miriam “Mae”, was a loving wife, mother, daughter, sister and friend. She was a true servant of GOD committed to both embodying and proclaiming His Good News through music.
Mae was diagnosed with Leiomyosarcoma in June 2017. Originally discovered in her uterus, after various surgeries, it metastasized to her right lung. After battling the disease for over two years, she passed away August 2, 2019 leaving behind her beloved husband Luigi and daughter Victoria.
The fund’s objective is threefold: first, to help build upon current technology toward finding a cure for this affliction. Second, in concert with the LMSDR Foundation, to foster an increased awareness of this type of cancer. Finally, with increased resources and awareness, we pray that families in the future will be spared the difficult battle that Mae and her family had to endure.
About Leiomyosarcoma Support & Direct Research Foundation (LMSDR)
This fund was created out of love for Mae, to help others win their battle with leiomyosarcoma by funding LMS specific research. Leiomyosarcoma Support & Direct Research Foundation (LMSDR) raises donations for leiomyosarcoma research and patient support. We advocate directly with sarcoma researchers to study leiomyosarcoma. We offer the largest moderated support group online for leiomyosarcoma, where patients and loved ones get the latest LMS news and personal support. The LMSDR’s website offers local support groups, details of what we do, the research we have funded and many resources for the leiomyosarcoma community. The LMSeAlerts is our monthly newsletter, offering more updated clinical trials, news and community events. The Leiomyosarcoma Lifeline is our new blog, featuring patient stories and our well-known Long Term Thriver stories.
We collaborate with researchers and other organization to reach our mission and vision of finding treatments that will work. We have created the Leiomyosarcoma Tissue Bank for researchers to study our disease, the leiomyosarcoma website for education and support at our leiomyosarcoma patient conferences, in Denver, Colorado, San Francisco, California, New York City, New York, and Maui, Hawaii. Please stay in touch with our website for more upcoming events sponsored by Leiomyosarcoma Support & Direct Research Foundation.
Leiomyosarcoma Support & Direct Research is an all volunteer organization which Mae supported. We are proud to have Patient Registry to collect data, and ran successful blood collections for study. We have brought patients and loved ones together from all over the minimal amount of expenses as possible, to ensure your money goes directly to funding promising research for leiomyosarcoma specifically. You can volunteer, put on fundraisers, promote LMS awareness and ask your employer for matched funds. Please consider making a donation and helping us Work, not wish, for treatments that will work for us. We have been a 501(C) (3) since 2006 and a tax-free charity.