Louise Dery Shannon

Louise Dery Shannon was born on April 6, 1951 in Washington, DC. In 1972, she married her husband, Michael, and they had one daughter together. Since being diagnosed with leiomyosarcoma in May 2007, Louise bravely battled this disease in attempt to spend more precious moments with her family and friends-she was successful! In this past year, she saw her grandson, JJ, take his first steps and say his first words. She heard her granddaughter say, “I love you, Grammy” and give her those special hugs only grandbabies can give. She experienced the fierce love and support from all of her family and friends. She renewed her faith in God. She stated that she felt that this past year has been a gift from God that has allowed her to let her family and friends know how much she loves them and how wonderful her life has been.

It was Louise’s last hope that her passing give others hope to beat this disease that affects only 4 out of 1 million people. Because of the rarity of leiomyosarcoma, few doctors have the expertise to treat it appropriately and not nearly enough research is being conducted to find a cure. Even though Louise received top-notch medical care, LMS is ugly, unpredictable, and in too many cases, unrelentless. Louise has asked her family and friends to make donations to her Research Fund that will go to research for a cure. Even during her final moments, her compassion, generosity, and concern for others

If you would like to make a donation in honor of Louise  please fill in the boxes to the right.

Please note: your online receipt will not have the honoree’s name – however your name with the honoree will be listed in the THANK YOU DONORS page for the family to see.


About Leiomyosarcoma Support & Direct Research Foundation (LMSDR)

We collaborate with researchers and other organization to reach our mission and vision of finding treatments that will work. We have created the Leiomyosarcoma Tissue Bank for researchers to study our disease, the Leiomyosarcoma world for education and support at our Leiomyosarcoma patient conferences, in Denver, Colorado, San Francisco, California, New York City, New York, and Maui, Hawaii.  Please stay in touch with our website for more upcoming events sponsored by Leiomyosarcoma Support & Direct Research Foundation.This fund was created out of love for Louise to help others win their battle with leiomyosarcoma by funding LMS specific research. Leiomyosarcoma Support & Direct Research Foundation (LMSDR) raises donations for Leiomyosarcoma research and patient support.  We advocate directly with sarcoma researchers to study leiomyosaroma. We offer the largest moderated support group online for leiomysarcoma, where patients and loved ones get the latest LMS news and  personal support. The LMSDR’s website offers local support groups, details of what we do, the research we have funded and many resources for the Leiomyosarcoma community. The LMSe Alerts is our monthly newsletter, offering more updated clinical trials, news and community events. The Leiomyosarcoma Lifeline is our new blog, featuring patient stories and our well-known Long Term Thriver stories.

Leiomyosarcoma Support & Direct Research is an all volunteer organization which Louise Dery Shannon supported.  We are proud to have Patient Registry to collect data, and ran successful blood collections for study. We have brought patients and loved ones together from all over the minimal amount of expenses as possible, to ensure your money goes directly to funding promising research for Leiomyosarcoma specifically.  You can volunteer, put on fundraisers, promote LMS awareness and ask your employer for matched funds. Please consider making a donation and helping us Work, not wish, for treatments that will work for us. We have been a 501(C) (3) since 2006 and a tax-free charity.


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Donation Total: $500