Leiomyosarcoma Patient Registry
Leiomyosarcoma Support & Research Foundation is proud to sponsor a new LMS Patient Registry – just for leiomyosarcoma patients worldwide. We encourage patients to “donate their data” into this registry so that researchers can find potential clinical trial participants as well as collect the histories and information to learn more about leiomyosarcoma. Our own Scientific Advisory members created the leiomyosarcoma questionnaire with the help of Dr. Meg Thorburn, an epidemiologist. Newly diagnosed with LMS? Call us for help navigating this new journey. Caregivers are encouraged to call us too! 1-866-912-2730
WHAT IS A LMS PATIENT REGISTRY?
Patients can collaborate with researchers to:
- Describe the natural history of disease
- Look for common characteristics
- Determine clinical effectiveness of treatments
- Locate potential volunteers for studies and trials
WHO IS CORDS?
Coordination of Rare Diseases at Sanford (CoRDS) Is based at Sanford Research, a not-for-profit research institution. CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and free for researchers to access.