Leiomyosarcoma Community Blog

This is a blog for the LMS community of patients, caregivers, doctors and researchers. It serves as a vehicle to give you a voice, share information and educate each other. Topics include anything to do with LMS… patient stories, poems, clinical trial explanations, book reviews and interviews with doctors and researchers on the latest treatments and projects. Newly diagnosed with LMS? Call us for help navigating this new journey. Caregivers are encouraged to call us too! 1-866-912-2730


If you would like to be a guest writer for Leiomyosarcoma Community Blog, please contact us at 2LMSDR@gmail.com. Please include a photo of yourself or a graphic about the topic. Submissions need to be Leiomyosarcoma (LMS) related in some way and your own original writing.

Uncharted Waters – What you need to know as a cancer patient during the Covid 19 pandemic

    By Vicki Strong 3/21/20   First of all, breathe!  As cancer patients and caregivers, this is not totally unfamiliar territory.  Most of us have learned a lot of coping skills that serve us well in these uncertain times.  We have been here before – canceled plans,...

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Pay It Forward

The simplest way to define “pay it forward” is that when someone does something for you, instead of paying that person back directly, you pass it on to another person instead.  When I was first diagnosed with leiomyosarcoma (LMS) in 2002, I received so much help from...

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LEIOMYOSARCOMA: What You Need to Know

Remember or honor a loved one’s legacy by setting up a dedication page and requesting that donations be made in their honor or memory to help find a cure for sarcoma.