Florence “Floss” Paul Johnston-Thornton was an uplifting, always positive, kind person who never stopped fighting LMS. Floss exhausted all options in fighting LMS, including conventional medicine and a holistic lifestyle. Floss passed away on February 19, 2013 after battling LMS for 2 years. Though Floss was an outgoing, always cheerful person, she was private about her health. Floss did not complain or seek pity, ever.

Meeting Florence was like reconnecting with a life-long friend. Floss left a positive impression on everyone she encountered. Always smiling, with a sharp wit, Florence was the life of any party. Floss was elected (last reigning) May Queen of Collingdale High School, 1981, and never let you forget it. Floss was competitive and always put her energy towards creating an honest and optimistic atmosphere. Floss was a beautiful person inside and out.

Florence left behind her husband of 28 years, John Thornton and 4 children, Lauryn, Courtney, Candyce, Tim (and Cliff Lee, who she referred to as her fifth child).

If you’d like to make a donation to Leiomyosarcoma Support & Direct Research, please do it HERE.   We will let the family know of donation – even if you don’t see it on your receipt.


About Leiomyosarcoma Support & Direct Research Foundation (LMSDR)

This fund was created out of love, to help others win their battle with leiomyosarcoma by funding LMS specific research. Leiomyosarcoma Support & Direct Research Foundation (LMSDR) raises donations for Leiomyosarcoma research and patient support.  We advocate directly with sarcoma researchers to study leiomyosaroma. We offer the largest moderated support group online for leiomysarcoma, where patients and loved ones get the latest LMS news and  personal support. The LMSDR’s website offers local support groups, details of what we do, the research we have funded and many resources for the Leiomyosarcoma community. The LMSe Alerts is our monthly newsletter, offering more updated clinical trials, news and community events. The Leiomyosarcoma Lifeline is our new blog, featuring patient stories and our well-known Long Term Thriver stories.

We collaborate with researchers and other organization to reach our mission and vision of finding treatments that will work.  We have created the Leiomyosarcoma Tissue Bank for researchers to study our disease, the Leiomyosarcoma Patient Registry to collect data, and ran successful blood collections for study. We have brought patients and loved ones together from all over the world for education and support at our Leiomyosarcoma patient conferences, in Denver, Colorado, San Francisco, California, New York City, New York, and Maui, Hawaii.  Please stay in touch with our website for more upcoming events sponsored by Leiomyosarcoma Support & Direct Research Foundation.

Leiomyosarcoma Support & Direct Research is an all volunteer organization. We are proud to have the minimal amount of expenses as possible, to ensure your money goes directly to funding promising research for Leiomyosarcoma specifically.  You can volunteer, put on fundraisers, promote LMS awareness and ask your employer for matched funds. Please consider helping us Work, not wish, for treatments that will work for us. We have been a 501(C) (3) since 2006 and a tax-free charity.


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Donation Total: $500