Daryl Brown
Our lovely unsinkable Daryl Brown passed away December 3, 2017 after a 5 year journey with leiomyosarcoma. Her loss is shared by the entire LMS community. Daryl’s words of wisdom has touched us all. The original organizer of the Maryland “Ladybugs” of fellow LMS survivors, she humored us all with her antics. At the 2015 LMS conference, she entered as the emcee dressed as an 1800’s captain of the Titanic, tossing out lifesaver candies to the audience. She dressed as “targeted therapy” on our Halloween cruise that evening. Daryl’s daughter Amy inherited her humor, and organized a scavenger hunt in her honor. And we will always warmly refer to her dedicated husband, as the Hubster.
We will always hold her love and humor in our hearts as we fondly remember Daryl Brown.
If you’d like to make a donation to Leiomyosarcoma Support & Direct Research in honor of Daryl, please do it HERE.   We will let the family know of donation – even if you don’t see it on your receipt.


About Leiomyosarcoma Support & Direct Research Foundation (LMSDR)


Leiomyosarcoma Support & Direct Research Foundation

This fund was created out of love, to help others win their battle with leiomyosarcoma by funding LMS specific research. Leiomyosarcoma Support & Direct Research Foundation (LMSDR) raises donations for Leiomyosarcoma research and patient support.  We advocate directly with sarcoma researchers to study leiomyosaroma. We offer the largest moderated support group online for leiomysarcoma, where patients and loved ones get the latest LMS news and  personal support. The LMSDR’s website offers local support groups, details of what we do, the research we have funded and many resources for the Leiomyosarcoma community. The LMSe Alerts is our monthly newsletter, offering more updated clinical trials, news and community events. The Leiomyosarcoma Lifeline is our new blog, featuring patient stories and our well-known Long Term Thriver stories.

We collaborate with researchers and other organization to reach our mission and vision of finding treatments that will work.  We have created the Leiomyosarcoma Tissue Bank for researchers to study our disease, the Leiomyosarcoma Patient Registry to collect data, and ran successful blood collections for study. We have brought patients and loved ones together from all over the world for education and support at our Leiomyosarcoma patient conferences, in Denver, Colorado, San Francisco, California, New York City, New York, and Maui, Hawaii.  Please stay in touch with our website for more upcoming events sponsored by Leiomyosarcoma Support & Direct Research Foundation.

Leiomyosarcoma Support & Direct Research is an all volunteer organization. We are proud to have the minimal amount of expenses as possible, to ensure your money goes directly to funding promising research for Leiomyosarcoma specifically.  You can volunteer, put on fundraisers, promote LMS awareness and ask your employer for matched funds. Please consider helping us Work, not wish, for treatments that will work for us. We have been a 501(C) (3) since 2006 and a tax-free charity.