Board of Trustees

Leiomyosarcoma Support & Research Foundation Board of Trustees are members and champions of the LMS community. Newly diagnosed with LMS? Call us for help navigating this new journey. Caregivers are encouraged to call us too! 1-866-912-2730

SHARON ANDERSON PROFILE PICTURE | PRESIDENT

SHARON ANDERSON

PRESIDENT

Board member and a leiomyosarcoma survivor herself since 2002, Sharon Anderson has tirelessly used her background in social work to help leiomyosarcoma patients directly while promoting research to find a cure. Sharon has been an integral part of LMSdr since its conception. In 2005, she successfully co-managed a patient tissue donation campaign. Follow-up interviews were performed two years later which contributed to significant research data and findings. She is currently the Patient Coordinator of the leiomyosarcoma tissue bank at Stanford. She has represented LMSdr for several years at ASCO and CTOS scientific conventions. Hundreds of leiomyosarcoma families have received her assistance and support online with the leiomyosarcoma support groups, several of which she initiated and continually moderates herself. As President of LMSdr, she’s committed to advocating for and funding the most promising research for leiomyosarcoma.

JANINE DITULLIO | EXECUTIVE DIRECTOR

SHARON ANDERSON

PRESIDENT

Board member and a leiomyosarcoma survivor herself since 2002, Sharon Anderson has tirelessly used her background in social work to help leiomyosarcoma patients directly while promoting research to find a cure. Sharon has been an integral part of LMSdr since its conception. In 2005, she successfully co-managed a patient tissue donation campaign. Follow-up interviews were performed two years later which contributed to significant research data and findings. She is currently the Patient Coordinator of the leiomyosarcoma tissue bank at Stanford. She has represented LMSdr for several years at ASCO and CTOS scientific conventions. Hundreds of leiomyosarcoma families have received her assistance and support online with the leiomyosarcoma support groups, several of which she initiated and continually moderates herself. As President of LMSdr, she’s committed to advocating for and funding the most promising research for leiomyosarcoma.

Ed Kurtz President LMSDR.ORG

ED KURTZ

FORMER PRESIDENT

Ed has been President of the board since his late wife, Suzanne founded LMSdr in 2006. He has been an owner and partner of a CPA firm and various businesses from 1968 to 2000. As an accountant and attorney, Ed’s financial guidance has been the cornerstone of the Foundation’s success. Ed lives in Tulsa, Oklahoma with his new wife, Denice Brice Kurtz.

JANICE GILBERT RUSHTON

JANICE GILBERT RUSHTON

FORMER PRESIDENT

Janice is a Physician Assistant who works in oncology as a sub-investigator of clinical trials with targeted chemotherapies in Detroit. She practiced law for 21 years prior to returning to school for a master’s degree in physician assistant studies. As a lawyer, she counseled healthcare facility staffing and home health care staffing entities. She is the surviving spouse of Kevin Rushton who was diagnosed with leiomyosarcoma in April 2009 (right hip tumor) and died in October 2012. She wants to improve public and medical community awareness of leiomyosarcoma and generate more resources to fund research for early diagnosis, effective treatment, and caregiver support. She has been a board trustee member since 2012.

VICKI STRONG | SECRETARY

VICKI STRONG

SECRETARY
Vicki Strong started her career in public relations at 3M, but developed a passion for not-for-profit communications, fundraising and operations management. She was on the board for several organizations for adults with disabilities, and Orphan Grain Train, a humanitarian relief organization. As principal for Katrina Hope, she raised funds and organized thousands of volunteers on disaster relief teams, work that she continues today. She is also a board/steering committee member for several local school, community and church foundations. She has been a Stage 4 leiomyosarcoma survivor since early 2010.

OFIR GABAY | TREASURER

OFIR GABAY

TREASURER
Our newest board of trustee member, Ofir has been with LMSdr since 2016.  Ofir is an accountant who owns his own tax business in Fort Lauderdale, Florida. He is a certified Quickbooks Pro Advisor and has experience working with large nonprofit organizations. Ofir lost his mother, Naomi Gabay to leiomyosarcoma in 2015.

Robin Allen Board Member profile picture

ROBIN ALLEN 

Robin Allen holds a PhD and master’s degree in Social Work. She is a professor in the School of Social Work at Boise State University. Diagnosed with leiomyosarcoma in 2012, she has been in remission (NED) since then. Her unique experiences as a cancer survivor and researcher, brings a valuable perspective. Since her diagnosis, she has been interested in developing a more professional/evidence-based understanding of the disease and its impact on one’s well-being. In her spare time she loves to travel, read, and take care of her many animals.

P.O. BOX

Post Office Box 52697, Tulsa, Oklahoma 74152

Support Group

Join our private Facebook support group.

LEIOMYOSARCOMA: What You Need to Know

Remember or honor a loved one’s legacy by setting up a dedication page and requesting that donations be made in their honor or memory to help find a cure for sarcoma.