LMSdr does not give individual treatment advice, but offers the following resources for your own pursuit of investigation. We highly recommend joining our LMSdr Facebook group where you will find over 1,650 leiomyosarcoma survivors and loved ones, offering much information and support.




Leiomyosarcoma Is A Rare Cancer 

LMSeAlerts – a free LMS newsletter




LMSdr Facebook Group
This is a closed group; posts show only to members of this group. When you request to join, the moderators will send you a question to answer before they can approve you. Please check your personal FB mailbox and respond.

ACOR L-M-Sarcoma 

Smart Patients




California, Los Angeles

California, Sacramento

California, San Francisco Bay Area

ChicaGoGo Girls (men too!)

Colorado, Denver


D.C. Metro  Area LMS “Lady Bugs” Group

Georgia, Atlanta


Minnesota/Western Wisconsin

Massachusetts, Boston – Dana Farber Group


Ohio, Columbus

Oregon, Portland

Texas, Dallas/Fort Worth

Washington, Vancouver




Campaign Againist Morcellation
Advocacy for women with uterine leiomyosarcoma that has been morcellated

Cancer Financial Assistance Coalition
A coalition of organizations to help patients with financial challenges

Cancer Legal Resource Center
Free attorney and legal help

Cancer Survival Toolbox
Award winning audio program

Connective Tissue Oncology Society (CTOS)
Scientific conferences for sarcoma researchers and doctors

Hope and Hugs
Gifts for patients

National Leiomyosarcoma Foundation
Promotes awareness, education and funds LMS research

National Patient Travel Center
Finds free air travel and lodging for patients

NCCN – National Comphrehensive Cancer Network
Sarcoma guidelines for oncologists

NCCN – Guidelines for Patients (Soft Tissue Sarcomas)
Simplified explanation of the guidelines for sarcomas

Northwest Sarcoma Foundation
Support and education

Patient Advocate Foundation
Free legal help for cancer patients & co-pay relief program

PubMed – The National Library of Medicine
Where to look up any published research study

Sarcoma Alliance
Offers education, support and financial help for second opinions at a sarcoma center

Sarcoma Foundation of America
Advocates and funds sarcoma research

Sarcoma UK 
Provides information and support

Slay Sarcoma Research Initiative
Raises money for LMS research