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Resources

LMSdr does not give individual treatment advice, but offers the following resources for your own pursuit of investigation. We highly recommend joining our LMSdr Facebook group where you will find over 1,650 leiomyosarcoma survivors and loved ones, offering much information and support.

 


LMS INFORMATION

 

Leiomyosarcoma Is A Rare Cancer 

LMSeAlerts – a free LMS newsletter

 


LMS ONLINE DISCUSSION GROUPS 

 

LMSdr Facebook Group
This is a closed group; posts show only to members of this group. When you request to join, the moderators will send you a question to answer before they can approve you. Please check your personal FB mailbox and respond.

ACOR L-M-Sarcoma 

Smart Patients

 


 LOCAL LMS SUPPORT GROUPS

 

California, Los Angeles amyreg@aol.com

California, Sacramento  KTrueman1@gmail.com

California, San Francisco Bay Area  2taikomom@gmail.com

ChicaGoGo Girls (men too!)  Brenglenn@gmail.com

Colorado, Denver  rockymountainlms@gmail.com

Connecticut  irishsingr@aol.com

D.C. Metro  Area LMS “Lady Bugs” Group  peggylussier@msn.com

Georgia, Atlanta  ccarignan@kw.com

Idaho  skisquid@centurylink.net

Minnesota/Western Wisconsin  vickistrong@comcast.net

Massachusetts, Boston – Dana Farber Group  Larissa_Hewitt@DFCI.Harvard.edu

NYC  gfaccini@live.com

Ohio, Columbus  sherilyn@sherilyn.net

Oregon, Portland  dondeem@msn.com

Texas, Dallas/Fort Worth  bergere1@yahoo.com

Washington, Vancouver  dondeem@msn.com

 


MORE HELP

 

Campaign Againist Morcellation
Advocacy for women with uterine leiomyosarcoma that has been morcellated

Cancer Financial Assistance Coalition
A coalition of organizations to help patients with financial challenges

Cancer Legal Resource Center
Free attorney and legal help

Cancer Survival Toolbox
Award winning audio program

Connective Tissue Oncology Society (CTOS)
Scientific conferences for sarcoma researchers and doctors

Hope and Hugs
Gifts for patients

National Leiomyosarcoma Foundation
Promotes awareness, education and funds LMS research

National Patient Travel Center
Finds free air travel and lodging for patients

NCCN – National Comphrehensive Cancer Network
Sarcoma guidelines for oncologists

NCCN – Guidelines for Patients (Soft Tissue Sarcomas)
Simplified explanation of the guidelines for sarcomas

Northwest Sarcoma Foundation
Support and education

Patient Advocate Foundation
Free legal help for cancer patients & co-pay relief program

PubMed – The National Library of Medicine
Where to look up any published research study

Sarcoma Alliance
Offers education, support and financial help for second opinions at a sarcoma center

Sarcoma Foundation of America
Advocates and funds sarcoma research

Sarcoma UK 
Provides information and support

Slay Sarcoma Research Initiative
Raises money for LMS research