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LMSdr does not give individual treatment advice, but offers the following resources for your own pursuit of investigation. We highly recommend joining our LMSdr Facebook group where you will find over 1,650 leiomyosarcoma survivors and loved ones, offering much information and support.




LMSeAlerts – a free LMS newsletter

LMS Boot Camp: Straight Talk for the Newly Diagnosed 




LMSdr Facebook Group
This is a closed group; posts show only to members of this group. When you request to join, the moderators will send you a question to answer before they can approve you. Please check your personal FB mailbox and respond.

ACOR L-M-Sarcoma 

Smart Patients




Arizonia,  emis.mis1@gmail.com or demars.hg@gmail.com

California, Los Angeles amyreg@aol.com

California, Sacramento  KTrueman1@gmail.com

California, San Francisco Bay Area  2taikomom@gmail.com

ChicaGoGo Girls (men too!)  Brenglenn@gmail.com

Colorado, Denver  rockymountainlms@gmail.com

Connecticut  irishsingr@aol.com

D.C. Metro  Area LMS “Lady Bugs” Group  peggylussier@msn.com

Georgia, Atlanta  LoneWolfew@msn.com

Idaho  skisquid@centurylink.net

Minnesota/Western Wisconsin  vickistrong@comcast.net

Massachusetts, Boston – Dana Farber Group  Larissa_Hewitt@DFCI.Harvard.edu

NYC  gfaccini@live.com

NY – Long Island Ladybugs   lepenny@rcn.com

Ohio, Columbus 

Oregon, Portland  dondeem@msn.com

Tennessee, Nashville  vickie.biggs@att.net

Texas, Dallas/Fort Worth  bergere1@yahoo.com

Virginia, Madisonville  shareewhitmer@gmail.com

Washington, Vancouver  dondeem@msn.com




Campaign Againist Morcellation
Advocacy for women with uterine leiomyosarcoma that has been morcellated

Cancer Financial Assistance Coalition
A coalition of organizations to help patients with financial challenges

Cancer Financial Toolkit 
Exceptional site for legal, insurance, financial information

Cancer Legal Resource Center
Free attorney and legal help

Cancer Survival Toolbox
Award winning audio program

Connective Tissue Oncology Society (CTOS)
Scientific conferences for sarcoma researchers and doctors

Finish Sarcoma Foundation 
Travel funds for John Hopkins sarcoma patients from MD, PA, VA, OH, or WV.

Hope and Hugs
Gifts for patients – profits support LMSdr

Leiomyosarcoma is a Rare Cancer 
Educational website

National Leiomyosarcoma Foundation
Promotes awareness, education and funds LMS research

National Patient Travel Center
Finds free air travel and lodging for patients

NCCN – National Comphrehensive Cancer Network
Sarcoma guidelines for oncologists

NCCN – Guidelines for Patients (Soft Tissue Sarcomas)
Simplified explanation of the guidelines for sarcomas

Northwest Sarcoma Foundation
Support and education

Patient Advocate Foundation
Free legal help for cancer patients & co-pay relief program

PubMed – The National Library of Medicine
Where to look up any published research study

Sarcoma Alliance
Offers education, support and financial help for second opinions at a sarcoma center

Sarcoma Foundation of America
Advocates and funds sarcoma research

Sarcoma-Oma Foundation 
Funds for Patient Travel to sarcoma centers

Sarcoma UK 
Provides information and support

Slay Sarcoma Research Initiative
Raises money for LMS research

The Cynthia Solomon Holmes Foundation
WeCare grants to LMS patients for travel and childcare during treatment

Triage Cancer 
Resources for financial, legal, insurance help